140 year of Shriners

140 year of Shriners

Friday, July 30, 2010

Greetings from Shriners Hospitals for Children - Northern California!

Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18 000 people. To give you a perspective on the rarity of this disease, consider that you have a better chance of scoring a hole in one in golf*.

ALD destroys myelin in the brain which then destroys a person’s ability to think and control muscles. ALD knows no racial, ethnic or geographic barriers – and most severely affects boys and men. Hope for children and their families is scientific research. The critical ingredient is funding.

No one understands the urgency of ALD research better than Ed and Barbara Crane. They lost their sons Timmy and Brian to ALD. Intent on providing hope by funding research, the Cranes established the Golf & Grape Gathering. Proceeds from the two day event benefit the Timmy and Brian Crane Foundation and Shriners Hospitals for Children – Northern California – which is actively involved in ALD research.

Your sponsorship of this event at any level is the key to saving lives. The purpose of the event is profound. The events themselves are focused on friends, food and fun. Details can be found on the Web site and attached Golf & Grape Packet. I hope you will join us. Shriners Hospitals for Children gratefully acknowledges Ed and Barbara Crane, their family, Tom Kees, and presenting sponsors, Hanson McClain and NewsTalk 1530 KFBK for producing the Golf & Grape Gathering. Thank you for your consideration. - Alan Anderson

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